It has been 20 years since the Institute of Medicine declared accurate, reliable, and respectful collection of information from patients about their race and ethnicity to be a fundamental precondition ...

The PHG Foundation warmly welcomes the recently published WHO principles for human genome data collection, access, use and sharing. It is a timely and important contribution to global governance, ...

Data collection is the process of gathering and measuring information used for research. Collecting data is one of the most important steps in the research process, and is part of all disciplines ...